Tag Archives: People

Tell Me One Fun Fact About You

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It can be anything. Your favorite vacation, a hobby…

“I’ve been to 157 US cities.”

“I love my grandchildren. I like to facetime them.”

“I have a mermaid tail. It’s pink and purple.”

“I have a wife and kids waiting for me at home.”

“I liked to play basketball as a child.”

“I care about people.”

“I used to ride in the rodeo.”

“My favorite place to vacation is the Caribbean.”

“My son recently got married. I don’t like my new daughter-in-law.”

I look at hundreds of labs values a day. I review vital signs, recorded bowel movements, and urine output in milliliters for all my patients daily. I place orders and write notes. I answer a nursing question about every 6 minutes during the busiest part of my day. I discuss every patient with my supervising attending. I discuss complicated parts of my patients’ treatment with my senior resident. I coordinate with nutrition, social work, physical therapy, occupational therapy, speech, and numerous others to ensure patients are taken care of while they’re in the hospital and safely discharged. I examine every patient every day and if their status changes (like their blood pressure drops) I re-examine them. I do more, but this paragraph is already too long.

The constellation of the medical workup I order, medications I prescribe, and information I gather about my patients’ symptoms are how I figure out what is ailing them and how to treat it. As you can imagine, when so much of my energy is focused on sorting through data, it’s easy to forget that under all the data I collect are people.

The best doctors I’ve worked with each have their own way of reminding themselves that they are caring for people not just treating vessels of illness represented by labs, imaging, and physical exam findings. And, within the past few months, I decided to develop my own method as I plan to be among the best doctors. It’s tricky because as a doctor there isn’t time to learn many of the details of our patients’ lives. There is time to learn something small, however, if I prioritize it.

My way to learn something about my patients as people is to ask about something nonmedical. My phrasing is, “Tell me one fun fact about you. It can be anything, such as a hobby or a favorite place you vacationed.” I’ve learned about the most amazing people this way.

The above simple inquiry has made all the difference in my practice as a doctor and my ability to endure the hustle that is inherent to residency. It’s easier to arrive at the hospital 6 days a week by 6 am (and leave often more than 12 hours later) when I’m showing up to help someone with family and a mermaid tail to go home to compared to showing up for a pile of numbers representing blood counts, vital signs, and urine volume.

It’s the people who are the patients who make medicine different from any other profession where people aren’t the subject. And it’s the people who have shared their fun facts with me who continually remind me why I entered the medical profession and where I’m going with it. And for that, I am most grateful.

Night Float

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The hospital is 24-7 all year long so there are always staff who care for patients overnight. I was the doctor on a night medicine crew for a few weeks recently. That stretch, I worked in a veterans hospital which meant all my patients had two things in common: they were in the hospital and had served in the military.

Here are some snippets from my nights:

  • “Let us know if anything changes,” I said as I left the room having been called there because the patient’s heart rate had dipped for a few minutes. They were in the hospital because their heart was beating too slowly. Therefore, any time their heart went even slower it was concerning and I went to evaluate them. On this visit to their room, the patient’s symptoms were unchanged from earlier that night and the night before. They were stable, though lightheaded. How to best manage their heart was being explored by the day team. The patient had insomnia even when not in the hospital. I was holding the sleeping medication they’d used for months because it could make their heart slower. It was our second night together, the patient and I, and we were doing our best to get through it. They watched TV because they couldn’t sleep and I answered pages (yep, in healthcare we still use pagers and faxes), saw patients, and ordered medications as the need arose.
  • I stopped by a patient’s room early in the night because they were a “watcher” (someone who was on my “watch carefully list” because they were more likely than others to take a turn for the worse). They had recently turned 80 and were chatty. They glanced up at the news on the TV in the room, “Politics in this country is in a terrible state,” they said. I expressed my agreement. “We got shot at for this,” the patient said, shaking their head and nodding at the TV. Six million responses flashed through my mind; none expressed what I wanted to say. None made the gravity of their statement less.
  • I was called to a patient’s room multiple times over several nights. Every time they were writhing in abdominal pain. Every time they had their blanket over their head. What kind of trauma had this grown-up person survived to feel it necessary to hide under their blanket in the hospital? Our workup, so far, was negative. No explanation for their pain. We tried treating constipation and urinary retention. We tried nausea medicine. None of that helped. Tylenol wasn’t working. What else should I try? Should I give this patient another small dose of opioid medication like they got during the day? Were they seeking out opioid medication because they were addicted to opioids or were they just in pain? Did it matter if they were drug seeking because of addiction if their pain was real? Was their pain real? If their pain was real, was an opiate the best tool I had to help lessen it?
  • I walked briskly. A patient who was admitted for a small stroke had an evolving headache. Maybe it was just a headache, but I wasn’t going to just give Tylenol and not examine the patient. It would be terrible to miss a second stroke we might be able to do something about. Head and neck pain. Their neuro exam was normal – no weakness or sensation changes. I examined their neck. My heart jumped with joy. There under my fingertips was a good old regular muscle knot. We have great medications for muscle pain. Besides, hospital beds are uncomfortable. When this patient got home (especially if they stretched) their knot would surely go away. Finally, a fixable problem!

There’s something surreal about starting your shift when the sun is setting and driving home to sleep after the sun rises – driving in work traffic going the opposite direction as everyone else on the work-home axis. Some nights in the hospital seemed to move backward and other nights zoomed by. I don’t recommend the night shift and I never will – this wasn’t my first rodeo as we used to say in the ED where I first worked night shift. Yet, this was my first time on nights as a doctor. Night float afforded me more independence than I’d had previously. I grew as the nights trudged on. As I drove home on the morning of my last night shift, I felt a little bit more like a physician than I ever had before. And though tired and excited to transition back to days, the feeling of growth was rewarding.

This Is How I Started Residency

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Starting residency was like a flash flood. Beginning from the first day, I was overtaken with more work than I knew what to do with. As a new doctor in a new healthcare system, I found myself equally challenged by creating care plans for my patients (like deciding which medications to prescribe them) and implementing the plans my supervising doctors and I devised (like ordering medications in the computer system). I completed tasks more slowly than I imagined possible. My patients were well cared for because I was part of a team, but my work hours lengthened in a way that the saying “burn the candle on both ends” was created to describe.

All of us headed to residency (regardless of specialty) are warned that it will be challenging. Each person experiences different challenges and different low points. Residency is hard for everyone because the hours are long and there’s a lot to learn. So, when my work hours exploded like water through a broken dam, I wasn’t surprised. I was surprised by how my program responded.

As my hours lengthened to a point where I was exhausted and just barely surviving, my chief residents stepped in to help me develop ways to become more efficient. Senior residents observed me throughout a shift and offered advice on how I could streamline my workflow. People on my team and other teams helped take some tasks off my plate so I could focus on learning the computer system better and on writing patient care notes quicker. I was given a little extra time off to catch up on sleep because I was on track to work far more hours than permitted by the national governing body that oversees US residency programs.

At first the extra help and attention made me feel like a failure. I tried to keep my spirits up because I’ve struggled to overcome big obstacles before; I always learned more from those experiences than I did from experiences where I didn’t struggle. Similarly, past experiences have shown me that it’s okay to accept help. Still, I wondered if I was going to learn enough or as quickly as I should if people helped me more than some of my peers. I wondered if I’d get better at being a doctor.

On my extra time off I reviewed my senior residents’ feedback. I reorganized my view of the electronic health record system to make it easier to access all the information I knew was important. I took time to recharge. When I returned to work, I was still a new doctor. I hadn’t changed much from the days prior. Yet, I found myself checking things off my to-do list without the help I’d required before my recharge day. With a little more sleep behind me, I was able to see how much I’d learned in my previous days of working – something I hadn’t noticed when I was exhausted.

As I reflect on my first two weeks of residency, I don’t look at them fondly. I do think that I’m a tiny bit better at being a doctor now than I was two weeks ago. I appreciate my past self for prioritizing a work culture of support and collaboration when applying to residency. I know that there are many hard days to come before residency is over. However, my experience during these first weeks made me confident that I will be able to overcome future hard patches when they come – not completely alone, instead, with a program supporting me as I find my path forward. Feeling like my residency program genuinely wants to help me become the best physician I can be gives me confidence in the residency training process and makes me excited for who I’ll become by the end of it.

This is how I started residency. The future will tell how I end residency.

Remembering

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I don’t remember them because their case was sad, though it was. Nor do I remember them because their case was complex or unique. I remember them because they were a DJ even though they were well beyond middle age. Who knew you could be a DJ when you were that old? Well, I learned after meeting them that you could be.

I learned of their DJ career when I met them briefly after their first stroke. The stroke was thrombotic (caused by a clot that blocked a blood vessel in the brain). Their balance was severely affected, but they were doing well, despite the stroke. There was no way to predict if they’d get their coordination back, but there was hope that they would recover if they made it past the first couple of days after their first stroke without another stroke. There’s the highest risk of another stroke in the days following a stroke.

When I saw them days later, they were not well. Their stroke had converted from thrombotic to hemorrhagic (caused by bleeding in the brain) and they could no longer speak, had limited movement, and were unaware of the world. I was struck by their deterioration. Lost in my reflection on how much the patient had changed and who they were before their brain filled with blood, I included the fact that they were a DJ in my report to the physician supervising me. I think the physician was looking for a focused medical history, but I slipped in the patient’s profession anyway. The physician teaching me paused and then said, “It’s good to get to know something about your patients as people.” It was the physician’s way of giving me positive feedback, but I found myself thinking, that would seem to go without saying.

As I continue my training, I’ve come to understand why this physician pointed out the importance of knowing patients as people: It’s easy to only ask questions related to diagnosis when you’re crunched for time and are actively thinking about what next tests, exams, medications, and treatments you should do to help the patient with their medical concern. Which is to say, the more responsibilities I have as an aspiring physician, the harder it becomes to emphasize getting to know patients beyond their medical conditions.

And, yet, when I do and can learn a tidbit about people’s lives (pets, careers, grandchildren, or whatever they bring up about their life), I’m always grateful I did. Grateful because it helps me remember each patient’s story and because it reminds me why I do medicine in the first place – to help people.

Medicine is awesome because uncovering diseases and making treatment plans involves solving complex puzzles. But the coolness of solving medical challenges is not enough to get me through all the terrible aspects of working in healthcare. My patients do keep me coming back even after the worst days on the job. Even though our interactions are brief, my patients and I have the potential to learn and achieve so much together. And, without a doubt, every patient is a person with an amazing story that I’m excited to hear a tiny bit about.

The “seasoned” DJ will never be a DJ again. This makes me even more glad that my last memory of them included them as a DJ, not just an ICU (intensive care unit) patient with a likely life-ending stroke. I think they’d have preferred to be remembered as a DJ (something they were very proud of) rather than a sick person. I know, if I were dying in the hospital, I’d want the last people to see me to know something about who I had been before I got sick.

Happy Birthday Soul Sister

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“Mbaé’chepa means How are you? ” I said. They repeated after me.

“Ipora is the response, it means good,” I said. They practiced. I smiled at their pronunciation; it was great by my ears, but they probably had my accent in Guaraní which would make every Paraguayan laugh.

A few of the dengue field researchers I was working with in Puerto Rico had asked me to teach them some Guaraní words when I told them I learned Spanish in Paraguay. Spanish speakers always want to know where I learned my Spanish because it surprises them. Whenever I say I learned Spanish in Paraguay I also explain that it’s a bilingual country because it’s important. I was happy because even though I was from New England and the gringa of all gringas (the whitest Anglo) and currently in Puerto Rico, I was teaching Guaraní while speaking Spanish. (The above conversation was in Spanish.) It was fitting, and the timing couldn’t have been better.

Recently one of my Paraguayan mothers, best friends, and soul sisters turned 70. I ached because I couldn’t be there. We would have danced until the wee hours of the morning, so late I’d have spent the night at her house because leaving would have seemed silly. She’d have danced with a one-liter glass bottle on her head, perfectly balanced, as I cheered her on. We would have feasted. There would have been a cake. Luckily, she sent me pictures which proved that she had all those things and more without me. It was the quinceañera she never had, she told me. She deserved it. She looked radiant in her yellow shirt. Her hair was short for the first time ever; it was always well past her butt when I lived in Paraguay. She sent me a video of herself dancing on a chair. 70 looked good on her.

My soul sister was on my mind before her birthday. I’m in a sunny place with palm trees – it’s the kind of situation that always reminds me of Paraguay and makes me long to go there again. As I drink my mate alone in the morning and tereré alone in the afternoon I know that if I were in Paraguay, I’d be drinking them with her.

When I lived in Paraguay and I told her I was single (Paraguayans always asked my relationship status, sometimes before my name), she was among the few to say “good for you” even though she had had one or two kids by the age I was at that time. She’d raised one daughter so independent that her daughter adopted a couple of children which is unusual in my Paraguayan community; her daughter went to college; and her daughter left the men she didn’t like, something my soul sister’s generation didn’t always do.

My soul sister only finished the sixth grade, but she spoke perfect Spanish because she’d worked in Paraguay’s capital city, Asunción. Usually, folks from her generation and the countryside (as she was) spoke mostly Guaraní. When she was young, she took a bus to Brazil without her mother’s permission. She came back eventually. On one hot afternoon she told me about her trip while we drank tereré and she cooked.

My soul sister is the only person in Paraguay who came looking for me when I needed finding. Culture shock is real, especially when you’re trying to build a life in a new country. The Peace Corps is the wildest emotional rollercoaster I’ve ridden. Which is to say that some days in Paraguay I needed real finding. She’s the one who knocked on my door and told me to come out and have lunch. She’s the one who welcomed me into her home whether I felt like talking or not. She can fill the silence as much or as little as needed. It’s her cooking I think of when I miss Paraguayan food.

She sometimes walked me part of the way home after our days that ran into evenings together. Always she blessed me and said a prayer for my safety when I left her home, even though for about half my time in Paraguay our houses were 50 meters apart and kitty-corner across a street.

I dreamed of seeing her mother one last time. But COVID and medical school delayed my return too long. We lost my soul sister’s mother before I could visit again. My soul sister was her primary caretaker. She was devastated when her mother died, but she’s also freer now. The grandson she’s raised is a teenager now (he was a kid when I lived there). I like to think it’s easier being a grandma raising a teenage grandson than a child grandson; but I don’t know if it is. Perhaps I’ll find out when I visit. I’m also overdue to see that same grandson who was like a baby brother to me. I was supposed to go back for his 15th birthday, but COVID squashed that plan. I’ve always had a sweet spot in my heart for that kid; it’s funny because my husband, who I met years after Paraguay, has the same name as my soul sister’s grandson. I wonder if I’ll recognize her grandson now that he’s almost a young man.

And just as she did when I lived across the street, my soul sister checks in now and again even though I’m seemingly lightyears away. She always asks when I’m returning to Paraguay. I’ve been back twice since I moved to the US, but that’s not nearly as much as I would have liked. Life doesn’t follow the course you expect. But when she sent me birthday pictures recently, I had a real answer: I’m visiting the first half of this year. Si Díos quiere (to use the Spanish phrase so popular in Paraguay, “If God wants”). I’ll bring my husband so that my soul sister and my other Paraguay friends can meet him. I also want him to see the country that stole my heart. I’ll visit my soul sister during her 70th year even if it’s not on her exact birthday. Luckily, Paraguayans are more flexible about time than Americans.

Did the Jones Cheat?

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I strode along one of my most frequented paths which combines my town’s main street and a side street that parallels it. I like the route because it represents two separate worlds despite their proximity. The main street is scattered with restaurants reflecting the many Central and South American cultures that comprise a large portion of my town’s heritage, hair salons, family-owned gift shops and clothing boutiques with their signs as much in Portuguese and Spanish as English, churches, places to learn English and send money orders, and empty store fronts. The side street is lined with one-family homes so large that if I lived in them, I’d need a map to navigate them and an intercom to find my family members in the far reaches of rooms and floors away from me.

As I crossed a four-way intersection, navigating the streetlights (including their left turn arrows) as I always do because I don’t think the walk signal ever turns on, I came upon the first house in the row of mansions. I slowed my pace. There was a landscaping crew. This was a common sight on this street and in many places in Connecticut – people spend lots of money on their lawns here. You always know a landscaping crew because they have big beaten-up trucks with letters painted on the side and a big trailer behind. What made this crew different was that they didn’t have mowing equipment, pruners, or leaf blowers from what I could tell. They weren’t even looking at the plants in the yard. THE LANDSCAPE CREW WAS HANGING CHRISTMAS LIGHTS AND CHRISTMAS WREATHS FOR A PRIVATE HOME.

I thought of that scene in The Grinch where one neighbor is using the Christmas light gun to decorate her house and the other neighbor is blowing electrical fuses to try to get her Christmas light display to just turn on. It never occurred to me that people might pay someone to hang their Christmas decorations at their home. Businesses obviously do that, but a private home having someone else decorate for Christmas?

On a later night, I passed the house of the family who had paid a crew to decorate for Christmas. Their house looked fantastic but in my heart of hearts the decorations were empty. I found myself wondering:

  • Is decorating for Christmas more about the quality of the decorations or is it more about the combination of annoyance and joy of putting them up and then criticizing and loving your own work until you must go through the added chore of taking the decorations down again?
  • Is decorating for Christmas about the quality of your house decorations or the conversations that go into convincing various family members or friends to help you hang decorations or the determination required to hang them all by yourself?

I found myself leaning toward the belief that decorating for Christmas was a lot about the journey and less about the end. Having decorated many a Christmas tree I cut down in the middle of my dad’s woods as a child, which is to say that we had untrimmed trees in all their asymmetrical glory, I find myself solidly believing that what makes home Christmas decorations special is that they were done by amateurs in the spirit of holiday cheer, family fun, and acceptance of an imperfect final product. It’s not that I faulted this family who paid to have their house decorated for Christmas, it’s just that their approached seemed business-like. Much like the Christmas displays on 5th Avenue in NYC, the house with decorations hung by a hired crew was beautiful.

I found myself chuckling about the concept of “keeping up with the Jones.” I found myself glad I grew up in a space and time where lawns were sometimes mowed by teenagers, often not mowed recently, and sometimes mowed by livestock. I’m not sure why the imperfection of unprofessionally maintained homes warms my soul, but it does. And as the holiday season unfolds, I find myself thinking about what exactly is most important in creating holiday spirit.

Heartbroken

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Tears fell down their cheeks. There was a long pause. “My heart broke and I’m just having trouble processing that,” the patient said. They’d been hospitalized for a heart attack several months earlier. I was seeing them at a primary care visit long after discharge. On paper they were recovering well, but they didn’t feel that way. They felt broken.

This interaction resurfaces in my mind periodically because it shows a side of illness that isn’t often seen in the hospital (where I’ve spent most of my time training). This patient had experienced an acute illness (heart injury). They had recovered their functionality. By medical definitions, they were a success story. Yet, they were miserable. How could that be?

In medicine we organize diseases into buckets with specific treatments and endpoints related to the organs affected by each disease. For example, this patient had a disease of the heart which might include endpoints like their ability to tolerate exercise or their heart rhythm. These endpoints are a simplicity required to synthesize something as complex as the human organism. However, as this story shows, looking at only specific endpoints can lead to missing things related to the illness that aren’t listed as clear endpoints to track. In the case of this patient, the heart is connected to the brain which is an organ of personality, mood, and feelings (among other things). While the functionality of this patient’s heart met all medical endpoints, their mood/feelings were severely affected by the experience of surviving a heart injury.

This patient’s experience reminds me that the diagnoses we make and interventions we do have lasting impacts on patients. Remembering this motivates me to provide information and support that I think will empower patients in their processing of what happened to them while they were hospitalized. I often wonder what conversations this heartbroken patient had with their care team while they were in the hospital recovering from their heart attack. Was there anything that their care team could have done differently to lessen the patient’s distress after discharge or was the patient’s feeling of heartbrokenness inevitable? I’ll never know the answer.

With this patient’s experience in mind, I try to ask myself if there is anything missing or left unclear before I discharge a patient. Healthcare is far from perfect (it’s quite broken actually) yet, even in a broken system, we can choose to communicate and help as best we can.

Sometimes People Step Up to Be Heroes

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The patient sat with a blanket over their head. They were a little goofy and fairly expressed their distaste of their bed and various lines (IVs, urinary catheter, etc.). I didn’t blame them for not liking the hospital; nobody wants to get sick. The patient answered many questions correctly – they knew their name and their spouse’s name – but they couldn’t tell me where they were, why they were there, or what month it was. Yet, to see them sitting there alert and able to talk with me was a miracle that I was humbled to see.

The patient’s spouse and child had saved them. The patient had a cardiac arrest (their heart stopped) after going to bed one night. Their spouse noticed, pulled them to the floor, and started chest compressions. Sometime in that whirlwind, 9-1-1 was called and their teenaged child helped the spouse do compressions. The spouse and child did compressions for 45 minutes, just the two of them, until an ambulance showed up. Once the ambulance crew arrived, the patient received a couple of shocks and then, the patient’s pulse returned.

When I started as an EMT, my first medical experience, my crew chief told me cardiac arrest is death. All we can do is try to give the person’s whose heart stopped a chance at a cat life by doing CPR to pump blood while the heart isn’t pumping, delivering shocks (if indicated) to jumpstart the heart, and giving medications that sometimes help the heart restart. 

It’s important to realize that getting a pulse back isn’t the end of cardiac arrest. After getting a pulse back the main question is whether the heart stopped so long that the brain was irreversibly damaged by lack of blood flow. The likelihood of brain damage from lack of blood increases the longer the patient remains without a pulse. 45 minutes of CPR, especially CPR by non-medical people who don’t have access to a device that can deliver a shock, is a REALLY long time.

Most people won’t wake up after 45 minutes of CPR. But this patient did. They woke up and their brain was well enough to talk and move their body. It was too early to know if they’d fully recover to the mental state they’d had before their heart stopped. However, what was obvious when they woke up was that they were mostly there. Their brain had survived 45 minutes without a pumping heart thanks to their spouse and child.

When we successfully get a pulse back after CPR and the patient doesn’t immediately wake up, usually they are sedated and put on a ventilator (breathing machine) for 72 hours. This gives their brain time to rest after not receiving good blood flow. Usually after those 72 hours of rest, we decrease their sedation (medications used to put people to sleep while on a ventilator) and see how their brain is working. This patient underwent this process of sedation and then wakening after 72 hours.

It’s impossible to know exactly what the patient’s spouse and child felt as they waited those 72 hours to see if their loved one would wake up. What I can say from seeing them sitting at the patient’s bedside and sleeping in the hospital waiting room, is that the experience changed them. Once the patient woke up, the stress floating away from their family members was almost tangible. The spouse and child had saved the patient’s life; they had stepped up when the powers that be asked them to step up. They had given the patient a second chance at life. They were, by all definitions I know, heroes.

Listening in Medicine

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This patient was always cheerful. Despite approaching a month in the hospital. Despite extensive injuries for which they required multiple procedures, surgeries, and a long course of antibiotics. Every time I checked in, they had a visitor, were listening to mass, or were simply doing life things.

One day when I stopped in, the patient was different. Still as pleasant as ever, but their cheer was guarded. I noticed that their voice was heavier. That their eyes were drooping at the edges. Their smile seemed more effortful. “Is everything okay? Are you okay?” I asked. In the minutes I was with the patient, I asked these questions periodically. Interleaving with the normal questions about signs and symptoms and physical exams I needed to do. I’ve learned that if you create space for things that haven’t been said to be said, sometimes patients share what’s bothering them and you can do something about it.

I paused as I was preparing to leave and asked one more time if the patient was okay. They started crying. I waited. “It’s just I haven’t seen my children. I miss my children,” the patient said. I’d come to learn that they had two young children who they hadn’t seen since their admission. They video called them but, obviously, that wasn’t the same as seeing their children and giving them hugs.

Since COVID, hospital visitation policies have become more restrictive. There are reasons for these restrictions, however the unintended consequence is patient social isolation which is bad for patient mental health to put it simply. At the time when I was seeing this patient, the hospital I was in was not allowing children to enter the hospital as visitors. Rules, though, usually have exceptions. I spoke with the nursing staff, as they steward hospital floors, and they were able to arrange for the patient to see their children.

This patient interaction reminded me how listening is critical in medicine. The hospital is a difficult place to have a good conversation as patient. The hospital is confusing and foreign to most people; there are unintentional power differences that exist as medical knowledge and understanding are uncommon among those who didn’t study medicine; there are many faces with different roles in the hospital so it’s impossible to keep track of who is the right person to ask for what; and the hospital is busy and short-staffed, so healthcare workers are doing their best but they are always running behind. Given these barriers to communication, the burden falls not on the patient but on their care team to ensure that time to hear patients’ needs is made. To do this doesn’t necessitate longer patient interactions, necessarily, but it does necessitate listening for more than reports of a fever or bowel changes.

It can be hard to listen for things that don’t directly relate to changing a patient’s care plan. Yet, patients are more than carriers of disease and, therefore, to best support them in their journey to better health we in healthcare must listen to all ailments. Sometimes we can lessen a burden and sometimes we can’t. Arranging for a parent to see their children after weeks in the hospital is something we can solve easily. I was glad I was able to help this patient see their children, but I wondered how long the patient had suffered from missing their children. Perhaps, if one of us from their care team had listened more carefully earlier, the patient wouldn’t have had to wait almost a month before seeing their children. To me, it seemed unreasonable to add the burden of missing loved ones to this patient’s burden of healing from an accident that had almost killed them and injuries that would likely change their life. Being sick is hard enough; let us in healthcare not forget the human things, like social supports, that can help make healing less daunting. 

Windows to the Soul

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I looked into the eyes of a patient for brief moments when they opened their eyelids before falling asleep again. Their eyes were like wells, but there was no sparkle in them like there is in a healthy person. The patient had a bacterial infection of the blood that had attacked their heart resulting in a large vegetation (collection of bacteria and other gunk) on one of their heart valves. Pieces broke off this vegetation, traveled through the blood vessels, and seeded infected clots in the patient’s lungs and spleen. That wasn’t all though. Their body was so inflamed some of the proteins in their blood were destroyed, consumed, or their production reduced. At first, the patient needed transfusions of red blood cells and platelets to survive.

In other words, the patient was sick. They were not just sick, their chance of death within 30 days increased by 16% each day their blood had bacteria in it according to one study.1 Their chance of death was about 40% by another estimate.2 It took us about a week of antibiotics to clear the infection from the patient’s blood, but that wasn’t the end of the patient’s need for antibiotics because of their heart infection and septic clots. They would need at least 6 weeks of antibiotics and likely several procedures and surgery to fix their heart.

I looked into the patient’s eyes each day, hoping to see a sparkle there that would suggest they were awakening from the depths of illness. I hoped and yearned to meet them rather than just examine their feverishness. I was rooting for them. I root for all my patients, but this patient’s eyes were so empty I knew they needed my thoughts more than the other patients I was caring for at the time.

It would take over a week, but one day the patient’s eyes shone with the flame that I think of as the soul, that spark of life. The patient was here with me. They could tell me their name and what was going on. They were awake! How the weeks ahead would unfold could not be predicted. In medicine, we don’t have a crystal ball that tells the future any better than a meteorologist can forecast the weather 10 days out.

My rotation would end before the patient was close to healthy enough to leave the hospital. They were sleepy when I last saw them because they were recovering from their first heart procedure. I touched their shoulder briefly and looked into their eyes. They were so strong and so brave. I reminded them of this and of how much they’d healed since we met. I told them to hang in there. It wasn’t much, I knew, but it was the best I could offer as I prepared to join a different medical team.

In the hospital, we often meet people at the worst crossroads of their lives. We do our best to help them navigate to a destination of better health, but we often don’t get to see where our patients end up after we care for them. We must be comfortable with unfinished odysseys. So, to conclude my telling of this patient’s story, the last time I saw the patient with the wells for eyes, their eyes shown with the brilliance of victory. I will remember them by that brilliance.  

References:

1. Minejima E, Mai N, Bui N, et al. Defining the Breakpoint Duration of Staphylococcus aureus Bacteremia Predictive of Poor Outcomes. Clin Infect Dis. 2020;70(4):566-573. doi:10.1093/cid/ciz257

2. Kuehl R, Morata L, Boeing C, et al. Defining persistent Staphylococcus aureus bacteraemia: secondary analysis of a prospective cohort study. Lancet Infect Dis. 2020;20(12):1409-1417. doi:10.1016/S1473-3099(20)30447-3