The Social Determinants of Health

I was walking home from a series of hard shifts. My mind slid back to the first code I ever worked. “Code” is medical slang for when you do CPR and try to get someone’s heart to start again after it stops. My first code was a trauma-code. The story was that the patient lost a literal game of Russian roulette. The injury they had from the close-range bullet was not compatible with life. But the patient was young and when their heart stopped, the doctor overseeing the case didn’t pronounce them dead right away. Their heart didn’t respond to CPR; they died.  

That code was years ago. I hadn’t thought about it too much since it happened. Medicine is full of sad stories. I was surprised that the memory of the code entered my thoughts as I walked home. I wondered why I was thinking of it. I realized quickly: I was angry.

I don’t often get angry when working in medicine. The more common emotions I have on the job are excited, interested, happy, annoyed, exhausted, and sad – sometimes within the same interaction. I’ve only been angry a few times in my ever-lengthening medical career. I wasn’t angry at my first code, so why had I thought of it when I was angry?

On that day when I remembered my first code, I had cared for a patient who was dying of advanced heart failure even though they had the unblemished skin of youth. At first it would seem my current patient and the patient who died during my first code had nothing in common except an early death. But as I thought about it, I realized that they had more in common than it seemed at first.

Both patients would die harsh deaths. The code was fast, and the heart failure would be slow. And while both patients had easily observable health conditions, I found myself wondering if they were dying of those conditions or if they were dying because they were victims of something much greater. Could their deaths have been avoided if society hadn’t pushed them down so many times in their short lives? Were they dying of disease or of the social determinants of health?

The social determinants of health are non-medical factors that influence health; they’re the social and structural realities that shape how people interact and live. The social determinants of health include access to education, food, and secure housing. They include neighborhood exposures (the positive like puppies and playgrounds and the negative like violence and drug misuse). They include skin color, first language, sex, and gender. The list goes on.

I was angry because there was nothing more I could do for the patient with heart failure, just as there had been nothing more I could do for the young patient whose heart stopped all those years ago. Society had failed them. Collectively the two patients had experienced racism, the jail system, drug use disorder, mental health struggles, unfair treatment by employers, barriers to education, and likely countless other obstacles that I did not uncover during my short interactions with them. The patient dying of heart failure was difficult. They didn’t trust the healthcare system and they were profoundly unpleasant to work with. As I learned more about their story, I came to understand that while it is never okay to be mean it is also sometimes easy to see why a person could become mean. This patient had been knocked down so many times throughout their short life that it seemed all they knew how to do was fight. And, unfortunately, they were fighting for their life. And while they had not yet acknowledged it, they were losing. Would it be months before they died? Maybe a year or two because they were young? Maybe they’d be a miracle case and live much longer. I, however, don’t count on miracles.

I was angry because I thought the healthcare system was the last part of society to fail my patient with heart failure. I (and my team) tried to build a case to make them eligible for advanced heart failure treatments, all of which have strict criteria. The criteria are strict because all advanced therapies for heart failure are complex and require incredible collaboration between the patient and their care team, otherwise they fail to work. Among the options for some patients (not all) is heart transplant which has even stricter criteria because organs are scarce. In the end, the patient I was caring for was deemed not a candidate for any advanced therapies. They were not a candidate because they showed a consistent record of disregarding medical advice and missing their follow up medical appointments and prescribed medications.

After days of long conversations with the young patient with heart failure I understood that it wasn’t just personality that drove them to fight against medical advice. It was a fear of death, a desire for independence, and a long history of mistrust built on a life of the system failing them. There were many negative social determinants of health which had worked against them their whole life. I was angry because what is done can’t be undone. Just as death cannot be stopped when it comes calling. It’s unfair when and how death calls; it’s a metaphorical game of Russian roulette.

Being angry about the social determinants of health doesn’t solve them, but sometimes being angry is a place to start. And so, on that walk home and for a little while after, I let myself be angry. Part of writing this post was sorting out why I was angry. The next step is figuring out what can be done to address the social determinants of health. They are numerous and complex so there isn’t one solution and they’re slow to change. The young patient with heart failure reminded me that while I’m focusing on learning the science of medicine right now, I can’t forget the public health and community work I did before I jumped into residency. I can’t forget because when I’m an independently working physician, my patients won’t come to me with just disease. They will come to me with life stories that influence every aspect of their medical care.